Eleora Devasha Toomey passed into God’s Glory on April 26th, 2019. She led an extraordinary life by any definition. She pulled entire groups of people together to fight for a common goal. She weaved community by bringing together people that would have never met without her presence. Though she was non-verbal if you took the time to learn her language she spoke so loudly and clearly and with such spirit that all one could do was smile, laugh and nod. Her bright smile would light up a room, in that old cliché, but could also send your spirit soaring when you least expected it. Her laugh was infectious, but it was so much so that one would find oneself not only laughing along, but laughing to the point of joyous tears.
Though she was non–mobile, she mobilized people to assist her and each other. Her will power and incredible strength were spoken in reverent tones in both the medical community and between all of those that had the pleasure of being around her. Uncounted number of doctors have proclaimed uncounted times over the years words to the effect that they can’t believe she has “fought through” some new difficulty. She was sweet and kind and strong and filled to the brim with pure will power.
Nothing thrilled her like going very, very fast with the wind in her face and whipping through her hair. Whether that was on her special bike down the green way, a boat across the water or being pushed as fast as possible across the green field while playing Miracle League baseball - it did not matter as long as she was going fast.
Nothing moved her like music - usually of the very fast, very intense beat variety. As long as there were driving chords, she would dance and dance as long as the music would last. She would anticipate the downbeat to catch her breath. She taught us all to dance with her and like her controlled, but uncontrolled, passionate and fiery and joyous.
Music filled our house like bird song fills an early morning spring time forest. Nothing calmed her like being in the water. Floating in the pool or sinking waist deep into a lake was pure perfection for her soul.
As the years have passed, her medical conditions have gotten more complicated and difficult. She was born with an incredibly rare genetic condition. So rare, in fact, that she was the only one in the world with her genetic combination. In a world where everyone is unique, she was a singularity. She provided incredible hugs, intense souls searching stares and smiles that could turn an otherwise dour day into an emotional confection. Our every day was made better by her. All I can do is hope that we made her every day just as great.
She is survived by her Grandfather Ron Kirschbaum, Grandmother Nancy Toomey, her parents Sean and Cindy and her brother Cullen. Also, by her uncles, aunts and cousins. And by so many amazing friends that had the privilege of knowing her. She is now in the company of loved ones including her Grandmother Honey Kirschbaum, Grandfather Donald Toomey and countless Toomey’s, Kirschbaum’s, Sagers, Saunders, Martin’s, Paes’ and Goode’s.
In lieu of flowers please donate to Eleora’s Promise on Gofundme.com
A funeral service will be held at 11:00 a.m. on Wednesday May 1, 2019 in the Chapel of Bright Funeral Home 405 S. Main St., Wake Forest. Interment will be private.
The family will receive friends one hour prior to the service, from 10:00 - 11 :00 am.
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